A Love Story.

January 9, 2014

I can tell you the exact moment I fell in love with my son.

It was two days after his first Christmas. I peeked in on him before crawling into bed. He was lying there, asleep on his belly, just like he had every night since the day we brought him home from the NICU at 5 weeks old, 7 months prior. I smiled and thought to myself “I love him so much”, as chills wracked my body. It was completely involuntary and totally in spite of myself.

Before that moment, I had never felt joy in the presence of Gabriel… only sadness, anger, fear, and grief. I had held him so many times, my body wracked with sobs as I begged God to take him home. To free Gabe from his body and us from a future burdened with caring for a profoundly disabled child. So many factors played in to my inability to bond with Gabe… to LOVE Gabe. The times we had said goodbye in anticipation of loosing him in the NICU, the weeks without being able to hold him, feeding him through a tube instead of putting him to my breast, months without a smile or any sign of him knowing us… the overwhelming sense of him being broken. And I was broken too. He had broken me, and I him.

It is a foreign place to be; A world where you wish death upon your own child. But I lived there… for eight long months. Now, back among the land of the living, I feel no guilt over that province I once inhabited. Grief is a strange and complicated thing, making us feel and wish and pray for things that seem unimaginable until you have lived it. My eyes have been opened, and I understand pain, raw and dark and deep, in a way I never have before. For months, I felt like I couldn’t breathe.¬†Only now, as I find myself in a place where my weary soul is finding rest, am I finally catching my breath.

Early in this journey, a special needs mom entered my life at the exact moment I needed her. Having navigated the same turbulent waters, she offered me a platitude that has continued to resonate with me since the moment she said it:

“For a long time, you will feel like you are drowning. It will be dark and the waves will crash around you as you struggle to keep your head above water. You will grow wearier and wearier, until you are certain you can no longer keep yourself afloat. Then, at that exact moment when you have surrendered, when you have taken that last gulp of air and sunken beneath the surface, succumbing to the ocean trying desperately to swallow you whole…. you will feel the land beneath your feet.”

I am so thankful to say that I have¬† found the shore. The waves are still crashing…. but the sand is warm, and the sun is peaking over the horizon.

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January 23, 2010

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